Parkinson's Support Group
Saint Clair Street Senior Center Murfreesboro TN
Parkinson's Support Group
Saint Clair Street Senior Center Murfreesboro TN
Be Informed
Get Connected
You must be your own health advocate. Get yourself informed.
Spend time learning about how to combat this disease.
There are lots of great resources
Use them.
Parkinson's Related Resource Links
https://petersonforparkinsons.org/
https://www.parkinson.org/
https://www.apdaparkinson.org/
https://www.michaeljfox.org/
https://www.facebook.com/ParkinsonsDiseaseCommunity
https://www.neurotalk.org/
https://www.patientslikeme.com/join/parkinsons
https://www.dailystrength.org/group/parkinson-s-disease
https://www.pmdalliance.org/resources/support-groups/
https://www.facebook.com/RockSteadyBoxingMiddleTennessee1/
https://minesparkinsons.com/
https://davisphinneyfoundation.org/
https://www.myparkinsonsteam.com/
https://www.caring.com/
AWARE-IN-CARE kit
THE PARKINSON'S FOUNDATION
HAS DEVELOPED THIS POTENTIALLY LIFE SAVING KIT FOR PARKINSON'S PATIENTS.
READ MORE TO FIND OUT WHY YOU NEED ONE
Three out of four Parkinson’s patients will NOT get proper care if they are hospitalized. Half will be left with a complication. Imagine if that was your odds. Would you want to go to a hospital if that was going to be your results?
There is a kit offered by the Parkinson Foundation that our Support Group helps distribute called “Aware in Care.” This kit is about the size of a shaving kit. It provides a place to put Parkinson’s medicine but also contains a tablet of instructions for medical professionals. This kit is so important to the proper care of a patient with Parkinson’s. People with Parkinson’s (PWP) have been known to have life long complication as a result of lack of Parkinson’s knowledge by health care professionals.
Please help us reach out and locate those Persons with Parkinson’s so we can assist them in getting this valuable kit and let them know they are not alone.
These are important parts of the Kit
Read about how to prepare for your next hospital visit — whether it is planned or an emergency.
Share vital information about Parkinson’s with every member of your care team in the hospital.
The fact sheet comes in a tablet so you can tear off one for the new nurse after shift change. It could be a life saving part of the kit.
Fill in your card with emergency contact information and place in your wallet.
Deep Brain Stimulation Info Card
If you have had a deep brain stimulator implanted, share this information with anyone providing medical care to you in the hospital.
Complete this form and keep copies in your kit for use at the hospital. If you download the form, you can fill it out on your computer before you print it out.
Complete this form and keep copies in your kit for use at the hospital. If you download the form, you can fill it out on your computer before you print it out.
If you use the Duopa pump, share this information.
DID YOU KNOW ?
FRIENDS AND FAMILY NEED TO KNOW THIS
Parkinson’s disease (PD) is a long-term degenerative disease of the central nervous system that mainly affects the motor system. Its symptoms generally come on slowly over time. Early in the disease, the most obvious are shaking, rigidity, slowness of movement, and difficulty walking. The slowing of cognitive processes may also occur.
About one million Americans are reported to have Parkinson’s but the real number could be much more. That is greater than those afflicted by multiple sclerosis, muscular dystrophy, and Lou Gehrig’s disease combined.
While standard drug treatment protocols are available, these drugs can only slow PD’s progression but cannot stop, reverse or cure the disease. PD’s symptoms persist and expand and for many patients their quality of life declines and they withdraw into themselves and become isolated and alone. They require full time in-home care and the new role of primary caregiver for untrained spouses and partners becomes difficult, creating new sets of quality of life problems and challenges.
These are emotional and physical quality of life challenges. It can help to find others dealing with the same problems. PD Support Groups are made of families who understand and are coping. The person with Parkinson’s and the Care Partners discover more challenges as the disease progresses. Support Groups can help families discover new coping skills for old and new PD symptoms as they attend Support Group meetings.
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